"Adventures, I used to call them. I used to think that they were things the wonderful folk of the stories went out and looked for, because they wanted them, because they were exciting and life was a bit dull...But that's not the way of it with the tales that really mattered, or the ones that stay in the mind. Folk seem to have just landed in them, usually...I expect they had a lot of chances, like us, of turning back, only they didn't. And if they had, we shouldn't know, because they'd have been forgotten."

-Samwise Gamgee, The Lord of the Rings

Sunday, April 14, 2013

Post-op, day 5

Alina is doing very well. She's wire/tube/monitor free and completely off all pain meds but the ones to help settle her legs (because they are digging around in the nerves during surgery, post rhizotomy patients can have muscle spasms for a while). She's been on her prone cart, they've raised her bed up to partially sitting position, and she starts PT tomorrow!

Right after checking in

day before surgery (these are horribly out of order)

sleepy girl after surgery

post op day 2, got out of the room on a rolling bed!

right before surgery

post op day 3, real clothing!!

post op day 4, prone cart

visitors!!

Thursday, April 11, 2013

Surgery update

Alina's surgery went well. The doctor was pleased with how everything went. She went into surgery at 7:30 am and we went to meet her in the PACU at 1pm.

See resting comfortably in her new room up in rehab. Saturday she starts on the prone cart and light therapy. Monday she wil be starting therapy and working between the prone cart, wheelchair and rolling stander.

Overall, she's doing ok. Crabby she can't get up but enjoying the princess treatment. :)
If you would like, you can add me as a friend on Facebook for pictures and more updates. I just have my phone here right now and blogger doesn't like it.

Thank you for praying for Alina, and all the good thoughts and emails and texts. We appreciate them.

Also- please consider supporting the Ronald McDonald house.

Thursday, April 4, 2013

The big 6!

Birthdays and holidays are so much fun with Alina now. She understands them and knows what to expect. She looks forward to the traditions and of course, the gifts and cake! She's also really looking forward to her party this weekend!

Blowing out candles on her ice cream cake

I'm 6!

Easy bake oven stuff!

All I wanted for my birthday was this silly Care Bear!

Presents!


Pom Poms!

Bucks from Grandma!

Care bear!


My Auntie sent me new jammies and a bath robe for the hospital!

My Easy Bake Oven!

On April 10th, Alina will be going into the hospital for another surgery. This one is a doozy. She will be in the hospital for 6 weeks in therapy and rehab after the surgery. She will be having a Selective Dorsal Rhizotomy. This is her neurosurgeon explaining a rhizotomy in a short video (there are a few frames some might find graphic of the actual surgery. Just a fair warning... my kids watched it and it didn't gross them out!)
Gillette Video about Selective Dorsal Rhizotomy

Needless to say, we are a bit overwhelmed with not only the surgery, but also the long hospital stay. Dad was able to take a month off work, and we are blessed to have Grandma come to stay during the surgery and a few days after so we can stay with Alina in the hospital. So things will hopefully go very smooth and the kids will be able to continue on their regular routines. And we'll be able to switch off at the hospital so one of us doesn't have to stay the entire time and someone will always be with her.

Alina is asking a lot of questions about the surgery and recovery. She knows what the hospital and surgery is all about now, having been through the brain surgery for hydrocephalus twice. We are trying to be reassuring and answer her questions in a way she will understand. We appreciate your prayers. The closer we get to her surgery, the more we see how many people care about her. I will be updating here with her progress for her many admirers! :)