"Adventures, I used to call them. I used to think that they were things the wonderful folk of the stories went out and looked for, because they wanted them, because they were exciting and life was a bit dull...But that's not the way of it with the tales that really mattered, or the ones that stay in the mind. Folk seem to have just landed in them, usually...I expect they had a lot of chances, like us, of turning back, only they didn't. And if they had, we shouldn't know, because they'd have been forgotten."

-Samwise Gamgee, The Lord of the Rings

Friday, February 24, 2012

Project 365-Week8

Sure... eat the rest of the Valentine cake. Why not. (I was leaving for the day and Dad was in charge, so of course I didn't care!)

Anthony gettin' schooled on something. (By the way, I'd like to thank the person who so politely reminded me via anonymous comment last week that I have THREE children. Thanks. Now that I'm aware, I will let you know that child has asked to not be included in blog pictures/stories unless he's approved it first. He's well aware of the big WWW, and prefers his privacy sometimes. I respect that.)

Look at those criss-crossy feet!

Pop rockets! (his shirt reads 'Trouble finds me, even in camouflage', and its so true!)

Alina too

Ruffles and cute toes!

Love this outfit by Missie Moosie!

The weeks go by fast!

Monday, February 20, 2012

Project 365-Week 7

Isn't this how everyone plays computer games?

Playing outside in the big forest


The trees on the end of the big forest have great climbing branches

Alina at PT

Standing from the floor without AFO's on


Friday, February 10, 2012

Project 365-Week 6- A girl and her cat

So Bailey cat has always been kind of a lover. A warm lap, a soft bed, anywhere near his people, he was good. But as soon as Alina's room went pink (it was previously Anthony's room), he fell in love. He slept in that room every night before she came home. He loved the dolls, the stuffed animals, blankets, anything in that room he claimed as his own. Once she came home, it was like he had been waiting for her his entire life. She was his human. Wherever she is, he's close by. If she naps on the couch, he's right there. When he's ready for bed at night, he goes to the end of her bed. He's a fat happy boy when his girl is around.

This was taken right after Alina came home...

This was last week-

They are both entertained....

Wednesday, February 8, 2012

Oops, forgot week 5.

So I'm REALLY slackin'. Week 5 is about a week late. :)

Anthony hanging out with Alina at school for a bit.

The, uh, cat...walk...

New 'legs'! She's thrilled with the 'yeppard' print. :)

Window markers! These two love them!

At Al's Pinewood Derby races.

More window markers. She's entertained by these for long periods of time.

Wednesday, February 1, 2012

The CP Connection #3- Growth spurts

Every parent is familiar with this situation...

Child walks out of bedroom, fully dressed. Mom looks up and her eyes go straight to the ankle.... seeing that the child apparently grew 3 inches in his sleep, and his pants are now all set for flood stage.

Its irritating, especially with kids who grow in literal spurts, seemingly overnight (I have three of those...!)

But when a kid with CP has a growth spurt, its not just jeans that are outgrown. Muscles are outgrown. Muscles that had been stretched and allowed to grow, catch up with the bones a little. Then BAM! Growth spurt makes the bones grow, but those little muscles just can't keep up. So a child that was doing well with walking or moving is suddenly struggling again.

Its so frustrating. Alina's Cerebral Palsy affects her lower legs. Her right side is weaker, her left ankle more spastic. And her feet turn in. When she's stretched and between growth spurts, her outer muscles are working enough now that her feet only turn in a little bit. But after she grows, those little feet are turned totally in, and she struggles to walk because she falls over her own feet. And its back to square one.

This is my topic today because Alina just had a growth spurt. She's working so hard at PT, in the pool and with PT at school, and I didn't notice much growth clothing wise, but she got up the other morning and she could hardly function or get herself to the bathroom. It took a day or two for me to figure out what was going on, and her PT straight out asked me if she had grown because she was so tight in her ankles and her walking was awful, all stompy, feet turned and and her arms swinging like she was trying to take flight.

So we are back to three times a day stretching. Normally we only stretch after bath, when she is nice and relaxed and getting ready for bed. I notice a difference in a day or two of three a day stretching after she grows, and we can lessen it some. She doesn't necessarily dislike stretching, but its 15 minutes out of her playtime that she apparently thinks will really set her back. :)

Stumbo Family Story