Saturday, May 28, 2011
Eating her first s'more! Actually she took one bite, then took out the chocolate and ate that. LOL!
Hanging out in the yard, eating campfire hotdogs. :)
Watching the ducks with daddy
Her hair is to her shoulders now! I put a couple braids in, it was cute.... this girl has some majorly thick hair!
Eating ice cream after a long afternoon outside. :)
We attended a deployment ceremony.
Alina testing out some big wheels.
Taken by Alexander.
Riding with big brother.
Playing with friends
Enjoying the love of a big brother.
The boys and their dog
Friday, May 27, 2011
Periventricular leukomalacia is a long, difficult-to-pronounce couple of words that describe an injury to the brain that most often affects babies who are born prematurely -- although infants born at term may acquire this as well. Breaking the words down into their basic parts gives a little insight into this diagnosis. The ventricles are normal spaces within the brain that are filled with fluid. "Peri" means around. So, the first word describes a location, namely the area around the lateral ventricles, which are the largest fluid filled spaces of the brain. "Leuko" means white, and "malacia" means soft. Therefore, periventricular leukomalacia (PVL) refers to softening of the white matter of the brain located next to the lateral ventricles.
This softening represents injury to the brain tissue, usually due to lack of oxygen or blood flow to this area of the brain. This poor blood flow may occur prior to delivery, during delivery, or after delivery. Determining when exactly the lack of blood flow occurred is usually impossible. However, the bleeding within the ventricles, which may occur in babies born very prematurely, clearly puts the area around the ventricles at risk for PVL. Unfortunately, there is no effective treatment for PVL. Therefore, most research is directed toward prevention. But even in this arena, there are still no absolutely effective measures to prevent PVL other than preventing premature births.
The periventricular area of the brain primarily contains fibers that control motor functions although there are certainly other functions that reside in this section as well. Therefore, children who develop PVL are at high risk for developmental delays and motor difficulties. PVL remains a major factor in causing cerebral palsy. However, it is impossible to predict what a child will and won't be able to do based upon the extent of PVL. This is why careful developmental follow-up of these children is so crucial. Children with PVL have different outcomes and manifest their delays at different times and with different severity.
So there you have it, Alina's brain is missing some white matter, otherwise its developing and growing normally. And we think she is perfect just the way she is. :)
Tuesday, May 24, 2011
Friday, May 20, 2011
And I admit, sometimes I hesitate. Did I make the right decision to bring the kids when its so busy? Will a someone make fun of her? Will a parent get ticked off if she's blocking the stairs as she slowly makes her way up? What if she falls and gets hurt? Will I be scoffed at for taking a handicapped child to a park and letting her go?
But Alina? She NEVER hesitates. She NEVER questions herself. She NEVER notices anyone staring at her. She jumps out of the car, sights set on the tallest slide and makes it her mission to climb to the top and slide down that slide over and over again, even if it takes her ten times longer to get up there than it does other kids. She doesn't know she's different. She confidently walks up to other kids and says hi. She smiles and laughs when other kids do, and every.single.time. she is included in the games, even if her big old mom has to help her walk around to participate. Little kids don't care, they are the model of inclusion. They don't care if she doesn't speak clearly, or walks funny, or has braces on her legs. Neither does she.
Sunday, May 15, 2011
Princess chalky butt!
Still have the de-rotational bands, this time trying double wrap around the left side, which is the side that really turns in.
Does this girl love her daddy or what? :)
Wednesday, May 11, 2011
Monday, May 9, 2011
I often think about the kids still in orphanages around the world. Who comforts them when they wake from a bad dream? Who holds them if they are afraid of thunder and lightening? What happens if they are ill at night? Who is there to comfort them? They may have a nanny or a caretaker who is there overnight.... but does that compare to a mom and a dad? Does a caretaker take the time to comfort every child at every need? Its nearly impossible, and doesn't happen.
Children, regardless of age, race, disability or where they are in the world, NEED homes. They NEED a mom and a dad to care for them. They NEED to know that no matter what, someone will be there for them, night or day, scared, hurt, sad, angry or happy.
As I type this, a little 4yr old girl is sitting on my lap. Six months ago this girl wouldn't cry when hurt, she didn't show emotion, she kept herself guarded. But just today she spent 1/2 hour throwing a tissy because her brother smacked her in the arm when she was in his face. And she has a scab on her elbow that she's been nursing for a good four days, making sure to show it to everyone who looks at her, and some who don't. She seeks us out now when hurt, sad, angry or scared. She brings her blanket to me during the day saying 'mama wets nuggoo' (mama lets snuggle). She asked to be picked up and held, she knows what it feels like to be loved. Fully, unconditionally, and forever. She's starting to realize that comfort is something she wants.
Thats after only six months. 147,000,000 orphans wait in this world for a family. You don't have to be rich, have a big house, drive a fancy SUV, or be perfect. You don't have to be thin and have great hair. You don't have to be anything spectacular! Being someone's comfort, someone's stability, someone's MOM.... that makes you spectactular. Providing love, a home, a family. That is what kids want. Regardless of age, race, disability, or where they are in the world. A family.
God doesn't call the equipped, he equips the called. Are you listening?